Тема для новичков

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Re: Тема для новичков

Сообщение Евгения » 12 дек 2018, 17:58

Девочки,добрый вечер! Я тоже здесь новенькая, моему сыночку 1месяц и 10 дней,этот диагноз предварительно поставили после родов,а подтверждение пришло вчера. Все это время я надеялась, что диагноз не подтвердиться,НО УВЫ. Я просто в отчаянье, не знаю что делать, куда бежать и вообще как справиться с этим. Мне просто страшно от одной мысли, что это на всю жизнь у моего малыша. Как ему помочь,где найти специалистов?
Евгения
 

Re: Тема для новичков

Сообщение Наташа » 21 дек 2018, 06:54

Напишите мне на почту larina-82@yandex.ru
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Re: Тема для новичков

Сообщение Евгения » 15 янв 2019, 05:16

Здравствуйте, меня зовут Евгения! У моего сына подтвержденный диагноз СПВ, нам 5 лет, не могу зарегистрироваться на форуме, как это сделать?
Евгения
 

Re: Тема для новичков

Сообщение Наташа » 16 янв 2019, 11:32

Свяжитесь со мной по электронной почте larina-82@yandex.ru
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Re: Тема для новичков

Сообщение Юша » 08 май 2019, 06:36

Привет всем,
Я новенькая. Только что отправила запрос на регистрацию здесь. У меня сынок 2 года 1 месяц. Живем между Италией и Санкт Петербургом. Сегодня были у эндокринолога и подозрение на диагноз очень сильное (все симптомы есть). На днях придет результат анализа генетического, но уверенность в диагнозе ПВ почти стопроцентная. Вообщем...примите пожалуйста меня на форум:((((
Юша
 

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